Ask Question, Ask an Expert

+1-415-315-9853

info@mywordsolution.com

Ask Biology Expert

Bio marketing

In 1999 the Icelandic parliament passed an act to found a national gene bank, a large scale genetic database composed of blood samples for each of its 275,000 citizens. DNA remote from this blood was to be used as the basic for genetic studies. However lately, privacy concerns have produced Iceland to rethink the project.

Iceland was the first country to create a gene bank, followed by Estonia as well as then Tonga. Iceland is sole in that it has a fairly homogeneous population in which little immigration occurs as well as several natural disasters have contributed to similarities in the population's gene pool. Furthermore the country provides national medical care for its citizens consequently it has extensive medical records dating back to 1915. Furthermore, genealogies of numerous Icelandic families are available for as far back as 500 years.

Concerns arose when Iceland's parliament obvious to sell exclusive rights to all its genetic data as well as medical and genealogical records to a U.S. company, deCODE Genetics, for the purpose of gene discovery. In turn, deCODE promised to deliver any treatments and diagnostic tests developed from this research free of charge to Icelanders for the life of the patient. In a very short time deCODE signed a $200 million contract with Hoffman LaRocbe to search for numerous common human genetic diseases. Up to now, several genes have been positively identifies including a gene linked to osteoarthritis.

Opponents of this agreement felt that it allowable a scientific monopoly on a veritable gold mine of genetic information. However even more seriously, they protested to the gene database on the basis of patient's rights regarding informed consent and genetic privacy. In the United States, you should give permission to have your samples used for research. In Iceland everyone would be included in the genetic research unless they "opted out," although the data were to be encoded so that no ex could be linked to a particular person. Even though researchers are usually allowed access to medical nature of this data bank as well as its for -profit research caused some people to feel that individual consent should have been required beforehand the medical records were released to deCODE. In April 2004, Iceland's Supreme Court ruled that "the 1998 the law governing the formation of the database is unconstitutional for the reason that it fails to protect personal privacy adequately."

What concerns must the Icelandic citizens now be discussing with their parliament?

Biology, Academics

  • Category:- Biology
  • Reference No.:- M919230

Have any Question? 


Related Questions in Biology

1 give one hypothesis about the relationship between

1) Give one hypothesis about the relationship between protein sequence and protein color that you tested in the Aipotu I: Genetics & Biochemistry lab. 2) Give the genotype of each of the four starting strains of Aipotian ...

John has difficulty swallowing loss of taste sensation in

John has difficulty swallowing, loss of taste sensation in the posterior one-third of the right half of his tongue, and decreased salivation, especially on the right side. Describe the sensory portion of the affected neu ...

Questionat least two of the primary factors thought to be

Question: At least two of the primary factors thought to be involved in the observed changes in atmospheric CO 2 levels since the Industrial Revolution Part: How the Carbon Cycle Relates to Global

Identify the single major risk factor associated with the

Identify the single major risk factor associated with the reoccurrence of colon cancer.

Describe the different stages of development as a fetus

Describe the different stages of development as a fetus matures.

Trace the pathway of the blood through the heart and

Trace the pathway of the blood through the heart and differentiate between pulmonary, systemic, and cardiac circulation.

Biology1 what is the difference of fatty acid beta

Biology 1. What is the difference of fatty acid β oxidation in mitochondrion versus peroxisome? Why such a difference exists? 2. (a) Write down the structure of arachidonic acid (C20:4 Δ5,8,11,14). (b) What do you expect ...

In hiring a prospective employee there are legitimate

In hiring a prospective employee, there are legitimate reasons for not hiring someone. For example, the prospective employee may not meet legal requirements (i.e., he or she is a minor and cannot complete the tasks of th ...

1 severe combined immunodeficiency disease scid is fatal at

1. Severe combined immunodeficiency disease (SCID) is fatal at an early age. SCID is caused by the lack of the enzyme adenosine deaminase, which is encoded by the gene ADA. Suppose you want to use a gene therapy method t ...

Discussion topicolder people die for a number of reasons

Discussion Topic Older people die for a number of reasons: cancer, heart failure, complications due to diabetes, stroke, Alzheimer's, etc. Often times, the way we live our lives affect not only how long we live but what ...

  • 4,153,160 Questions Asked
  • 13,132 Experts
  • 2,558,936 Questions Answered

Ask Experts for help!!

Looking for Assignment Help?

Start excelling in your Courses, Get help with Assignment

Write us your full requirement for evaluation and you will receive response within 20 minutes turnaround time.

Ask Now Help with Problems, Get a Best Answer

Section onea in an atwood machine suppose two objects of

SECTION ONE (a) In an Atwood Machine, suppose two objects of unequal mass are hung vertically over a frictionless

Part 1you work in hr for a company that operates a factory

Part 1: You work in HR for a company that operates a factory manufacturing fiberglass. There are several hundred empl

Details on advanced accounting paperthis paper is intended

DETAILS ON ADVANCED ACCOUNTING PAPER This paper is intended for students to apply the theoretical knowledge around ac

Create a provider database and related reports and queries

Create a provider database and related reports and queries to capture contact information for potential PC component pro

Describe what you learned about the impact of economic

Describe what you learned about the impact of economic, social, and demographic trends affecting the US labor environmen